I Have Scleroderma

 

 

 
CREST/Limited
  • Ana - It gave me the courage to fight for my life even harder.
  • Michelle, 42 - Then the sore wouldn't heal 5 months or so.
  • Mackenzie, 19 - I was diagnosed with scleroderma,raynauds phenomenon,and ra when i was 15.
  • Wanda - I have improved over the years, but things are still tough.
  • Joanne, 49 - I remember thinking "That's the last disease I would ever want"
  • 'Nita - After all, I appear, on first glance, healthy, active and normal.
  • Becky - Instead of Aloha it has changed to HOWDY since i now live in central Texas.
  • Sarita, 37 - Who would want to nurse my ulcer ridden body?
  • Christina - I can get through this except there is no end to what I have.
  • Marie - I originally posted in the morphoea page but need to update.
  • Meralyn - My hands have always turned purple, then white when exposed to the cold or even when I'm nervous.
  • Laura - The doctors just looked at me with a look of disbelief. 
  • Andrea - I had been told many yrs ago that I have Raynaud's.
  • Sharon - I cannot swallow a mouthful of food without a mouthful of water or I choke.
  • Kathy - The esophageal muscles stopping is the most annoying symptom, waiting to see which way the food will choose to go...
  • Jenn - My doctor diagnosed me with an overlapping connective tissue disorder of lupus and scleroderma.
  • Linda - I am still not back to work but hopefully one day that will happen.
  • Dixie, 60 - "I knew nothing about the disease at that time, and I was so shaken by the news that I didn't really ask any questions."
  • Judy - "I've had some of the symptoms for years and never realized what all was happening."
  • Annie - "Like the rest of you this disease has changed my life..."
  • Beverly - "Little did I realize what I was about to face."
  • Aileen - "For me my loss of strength and endurance has been a hard blow."
  • Debby - "I was stunned when I was told that I had scleroderma." 
  • Sharon - "Now, I can eat anything as long as I take the medicine everyday."
  • Silezia - "The diagnosis was a painful and laborious affair."
  • Calledonia - "I realize now that I have lived with these symptoms for as long as eight years!"
  • Kathy - "Now I also have polyneuropathy and dermatomyositis."
  • Susie - "I remain hopeful, that we someday find a cure for all of these things."
  • Ellie, 64 - "I was having problems swallowing..."
  • Becky - "It's been hard at times."
  • Pat, 38 - "I became scared it had something to do with my Type 2 Diabetes."
  • Donna, 40 - "I don't have tears when I cry."
  • Sarah Bates, 50 - "I believe in natural medicine..."
  • Dorothy, 47 - "My breathing problems were due to pulmonary hypertenson."
  • Mario, 50 - "My breathing capacity was restored to 83%."
  • Alison, 29 - "I have more faith in natural medicines now than before."
  • Pat, 55 - "I thought my aching joints and muscles were due to overwork..."
Diffuse CREST/Limited Morphea/Linear Tributes Contact Home