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sfoltyn
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The whole thing gets quite complex.
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Preetham, 25 -
At first, I didn’t know what scleroderma was exactly.
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Phoebe, 9 -
My Morphea first appeared in July last year.
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Heather, 20 -
When I was 6 years old I was told I have scleroderma...Localized
thank god
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Kristina, 29 -
I was diagnosed last year in january.
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Bronwyn, 28 -
I panicked and I went to a
dermatologist.
- Melody,
22 -
Before too long I noticed some purplish patches creeping up on my
forearm.
- Gina,
Danielle's mom
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About 8-9 months ago I noticed a bruised like area on my
daughters upper back.
- Leslie
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Basically, it's almost as though the condition has snaked itself
around me, like it is wrapping me with a garland of discoloration.
- Briana, 22 -
This condition has
taken a huge toll on my self-esteem and body image.
- Emma, Chelsea's mom -
I am terrified that they
will continue to appear - so far they are bearable but gradually
becoming worse.
- Norma -
I'm back now to my old self with what I like to think
of as war scars on my leg.
- Hanna -
Her disease doesn't hurt her at all, but her leg is
noticeably disfigured.
- Richard -
If people can't accept
you for who you are regardless of this condition, are they worth
knowing?
- Hannah -
All I do is think about
the future and what it holds for her and how people will treat her.
- Bobbi -
The skin was
tight and it could not be pinched.
- Melody -
A few weeks later the
bruise turned into a scar and became extremely hard.
- Kim -
I didn't understand
what it was, neither did my mother, but the doctor said it wasn't a
big deal...
- Laura -
My mum took me to the
doctors and he said that it was just a stretch mark...
- Stacy -
I can't even do a
simple thumbs up.
- Claudia -
The area looked a bit
discoloured and sort of "veiny".
- Anonymous
- I am writing because I want to give parents hope.
- David
- It goes without saying that I was growing quite concerned.
- Anonymous
- "All of my joints have been affected as well as skin patches on
both hands."
- Ashley,
21 - "They took many biopsies from my skin and analyzed it."
- Roger,
36 - "As the years progressed, so did my scleroderma."
- Vicki - "I was only young and found it
all quite exciting at first."
- Izora, 28
- "At the time I thought I had been bitten by an insect and it had
caused a rash."
- Yolanda - "...a small
town nurse practitioner had a good hunch what I had."
- Susan
- "There were days when I cried and pleaded not to have to walk."
- Tonia - "...it is nice to
know that I am not the "only one".
- Anon - "After the
morphea was arrested, I never thought about the disease again."
- Theresa - "From
that point on it began to progress very quickly and by the age of 6
I was in a wheelchair."
- Kathy and BJ
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"Having scleroderma makes me angry. I don't like to feel
different from the other kids."
- Max
- "It's just part of Max, like a birthmark or scar."
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Coby
Heise - "The little brown
spots had turned into a pancake-sized
behemoth"
- Dave
- " I began to get a a bit
worried, and also very conscious of letting people see my body."
- Angela, 33 -
"I went thru alot of tests that one so little shouldn't
be subject to."
- Anita, 42 - "Most of my
friends live a long distance phone call away, and it isn't easy to explain what morphea
is."
- Justine, 7 -
"The Scleroderma takes up a large portion of Justine’s leg and she has
a lot of scarring."
- Kelly - "I felt I should tell my story to let a newcomer know
that you are not alone."
- Ann Russell - "I made no
school friends. I had no interest in learning anything because I was so consumed with how
can I make this go away and look normal."
- Holly, 11 - "Holly is my angel in disguise."
- Lark, 44 - "I underwent a
lot of experimental medical treatment..."
- Sandy - "About a year ago I
noticed a bruised area on my upper arm."
- Mary McKay, 42 - "The Lord
has been good to me."
- Kim, 31 - "The doctor at the
time suggested amputation."
- Sharon, 45 - "I am still trying to fix if not the
disorder at least the side effects that most of the doctors have not bothered to
treat."
- Ed Dunscombe - "My daughter is
six years old and has linear scleroderma."
- Shari Bumstead - "I have
an 8 year old son who has linear scleroderma on his face..."
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