"It's a long and hard road, but God will not give you anything He thinks you can't handle." |
My name is Chris. I was told I had Ssc in 1995. I never ached so much before - it hurt to do anything. My doctor thought at first that I had the flu, but when I came in all swollen they did blood work and sent me to a specialist. He told me what I had and gave me prednisone sent me home. When I went back the following week and still felt the same he told me to give it time. I started to cry which he did not like and in a very stern voice said that won't help you any. I got real upset which he could see and he asked if I wanted to see someone else. I'm so happy that I did. She is wonderful doctor. | My hands were always cold and different
colors from pink to blue. They're bent and it's hard to do things, but if you put your mind to it, it's possible. I lost a lot of weight and opening a cupboard was impossible. My family had to get my meals, wash me, dress me do almost everything. For a person who had two kids, worked, ran, and did just about everything because my husband worked odd hours, it was an awful struggle letting people do things and drive me places. I still have a hard time asking. |
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| Ssc affected my skin badly, then came
water on my heart, which I had to have an operation for. I got water on my lung after that
and back in the hospital my doctor recommended I go for a low dose of chemo. I was
supposed to do that for a year but after the 6th month I became very sick - they think I
was allergic to it. When I try to do a lot, I get very tired - I get tired a lot anyway! |
I feel I have come along way. I can do a lot more for myself, but it's still hard and climbing up or down the stairs is bad. I put some weight on, which I'm not crazy about. The doctor said the medications I take have something to do with it. I take 7 different kinds just to keep me going. If I have a bad day, I have an extra pain pill to take. Would I love to get rid of these pills! | It's a long and hard road, but God
will not give you anything He thinks you can't handle. When you're down, it seems you find
the courage or a friend, and sometimes a good cry seems to help. Hope this will help
someone - I could go on forever. I hope to hear from some of you. Email chris50@ webtv.net copyright © 1998 Amie Yaussy |