My name is Jessica. I am 25 years old, and married. I live in a small town
in Tennessee about 2 hours between Nashville and Memphis. I was diagnosed
with Scleroderma in May 2001.
This disease is very frustrating. Thankfully I have my husband, my family,
and the few friends that believe that there is something wrong with me. I
think what is hardest about this problem is that a lot of people don't
believe that there is anything really wrong with me. Alot of people just
think that I am lazy. But the truth is is that it is just very hard for me
to do much of anything.
This thing that I hate the most is that I am always cold. This all started
with the Raynauds in my hands, and that never really seems to get any
better. The ulcers will go away for a while, but they always come back. I
have trouble getting dressed, there are days when my husband has to help
me-which is very embarassing, I can't open alot of jars, basically-I could
not live on my own. I know that there are alot of other people who are in
the same situation that I am in, please give me some ideas of how to make
my day to day living a little easier.
Plus, on top of it all, my husband and I are thinking about getting
pregnant. I think that I am more afraid of this than anything else in the
world. There are so many what-if's to consider. Anyone have any advise?
The only perk that has come out of this is that I have not had the flu, or
a cold. I guess my body has more important things to worry about than a
pesky little flu-bug.
Please, anyone, write me and give me your coping ideas. I am also here if
you just need to complain.
Thank you - ziggyfreej@aol.com
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