| When I was born I had an overgrowth of
the eyelid. The doctor easily corrected it, which he and my parents thought was a birth
defect, but now I know it was probably the first sign of Scleroderma.
|
 |
| When I was born I had an overgrowth of
the eyelid. The doctor easily corrected it, which he and my parents thought was a birth
defect, but now I know it was probably the first sign of Scleroderma.
|
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| Then at the age of two I fell
off a ladder and received a serious head injury that caused brain damage to the motor part
of the brain. I believe this was a cornerstone in the development of the disease. Then at
the age of twelve I developed a strange rash on my back near the spine that itched if I
scratched it. My mother tried to treat it with creams but it began to spread and cause an
indented impression on areas of my back, down my left buttocks and left leg (the side that
was paralyzed in the fall). I went to see my family doctor who took a biopsy and
discovered it indeed was Scleroderma. My doctor then contacted The University of
Washington and set up for a team of specialists to view the rash. After the viewing they
stated it was the most benign case of Linear Scleroderma that they had seen and I would
not have any further problems and that it may even regress. I am 31 now and up to the age of 21 I had no problem whatsoever, but then I had difficulties with my first child and was put on predisone while pregnant. Leah was born healthy despite it all. Recently I have had two children Jon in 1997 and Jacob in 1998 both had problems that now I realize were connected to the Scleroderma such as low birth weight, hypertension while pregnant, and with Jon there was Uterine Growth Retardation. Since the last birth I have had new symptoms. I wake up with my right hand very dry and bee sting type sores on them that itch and are painful. They eventually go away but soon return. My fingers that are affected, get very dry to where they split and bleed and also have the sores. I also have been to the ER twice with bowel pain I mean PAIN, only to be sent away after the attack with no answers. I realize, just now, that this condition even though linear can progress.
I feel for all those who go through this same experience. I was so overcome with emotion that there were others with this condition who knew my pain and uncertainty. I felt I should tell my story to let a newcomer know that you are not alone and hope is always available just one heart beat away. Please write me with all that you may know about this condition I really need to be informed and updated. Thank you, Kelly Please email me at kljj@worldnet.att.net Return to Morphea/Linear page copyright 1999 Amie Yaussy |
