My name is Preetham and I have been diagnosed with Scleroderma in 1999,
although I knew I have been having it from much earlier. At first, I
didn’t know what scleroderma was exactly. I have been taking complete
medical check ups every year to ensure if my organs are functioning
properly and by God’s grace, everything is ok. My life has changed
completely ever since I knew that there’s no cure for this.
I believe I have localized scleroderma (Morphea - I think). There are
thick patches of skin all over my body. Both my hands and stomach are
scarred with thick patches of skin. At times it pains but I have coped
to live with it. I try very hard to live as a normal person. I am tired
of taking medicines daily and I have stopped taking it. I have been told
to apply various creams so that the skin becomes soft, and to an extent
it has. The name of the cream is Elovera.
Ii have come across this site long back, but only now I have the courage
to share my story. My physical appearance and self confidence has taken
a back seat. I have red spots on my face. Don’t know whether its
inflammation. But it keeps coming and going. I am unable to gain weight
and look very thin in appearance. I also have a problem with swallowing
and cannot eat very fast. Atleast take an hour to eat my food.
I have prayed to God and he gives me the stamina and energy to do my
work. I would encourage everybody to submit themselves to the Lord and
he would give us the required strength to carry out our work. I work as
a research Analyst and am able to do work my work properly like a normal
person. Other than my physical appearance, it would be very difficult to
find out that I have scleroderma.
I am 25 year right now and although my doctor says that I will not live
longer than 35 years, I don’t believe him. God has a purpose for our
lives. He will never let us down or leave us before our purpose is
accomplished. I would love to know your story on how you cope up with
scleroderma.
preethamonline@yahoo.com
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