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Well,
I have known of my Scleroderma from 1971.
I was 35 at the time. At
first it was very active and I was given only 6 months to live. My
husband at that time could not stand up under the It
has not been easy but I believe that if one gets into a hole the only
way out is by one's own boot straps.
Doctors, of course, have knowledge but I have found that even
they don't really understand all we have to endure. I first found out
because of the difficulty in swallowing.
I lost 55 pounds in 5 weeks and I was not on a diet! now I have a
thyroid problem and diabetes as well as cirrhosis of the liver.
The lungs are as affected as well.
I
keep my fingers loose by practicing my piano daily for about an hour.
Docs agree that I should not stop this or they will freeze up. As
for my music it is my number one talent. However I do knit or
crochet over 100 winter hats for those who do not have the money for
one. I’m very active in my church. For years I was a
children choir director. Now as for color
I do believe it is blue, can you tell? I
am also a white face clown. I performed at the Tennessee Valley
Fair last year and hope to be asked back this year. I truly love
being a clown ! In other words if it is artistic, I do it. I believe that the strong Oak Tree is the most beautiful thing other than man that God created. email
ssknox1@juno.com
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